HAE Canada, along with 12 other rare disease patient organizations, and Takeda Canada, unite to launch the I Am Number 12 campaign. This campaign elevates the voices of individuals, or Changemakers, from across Canada to increase understanding and raise awareness of the fact that 1 in 12 Canadians will be affected by a rare disease in their lifetime, and also to highlight the importance of incorporating the Rare Disease Drug Strategy in Canada. HAE Canada is honoured to be a part of this initiative, and we are extremely proud of Kerstyn Lane, HAEC’s Pacific Regional Director and VP, who is one of the campaign’s Changemakers.

Please click here to read further about the I am Number 12 campaign.

Follow the stories on Instagram. Starting November 28th, the campaign’s social channels will spotlight each of the Canadian Changemakers to share their unique rare disease stories and perspectives, shown through the lenses of creative Canadian photographers.

Please meet Kerstyn’s fellow Changemakers:

  • Dr. Aneal Khan of Calgary, Alberta
  • Ashley Hickey of Amherst, Nova Scotia
  • Beth & Madi Vanstone of Beeton, Ontario
  • Claudia Caminiti of Ottawa, Ontario
  • Elisabeth Linton of Toronto, Ontario
  • Éloïse Beaupré of Montreal, Quebec
  • Gail Oullette of Sherbrooke, Quebec
  • Holly Gerlach of Edmonton, Alberta
  • Kelly Newell of St. John’s, Newfoundland
  • Kerstyn Lane of Vancouver, British Columbia
  • Meghan White of Montreal, Quebec
  • Stephen Parrott of Pickering, Ontario
  • Somtochukwu Ibezi of Saskatoon, Saskatchewan

We encourage everyone to please help our voice be heard: tag a friend, share our stories, hear our voices.

Share using hashtag #IAmNumber12 / #JeSuisNuméro12 and tag @IAmNumber12CA.