Today, BioCryst Pharmaceuticals, announced it successfully completed negotiations with the pan-Canadian Pharmaceutical Alliance (pCPA) for the oral, once-daily treatment ORLADEYO® (berotralstat), which is approved in Canada for the

We are delighted to announce that following months of dedicated brainstorming and strategizing, the HAE Canada Board of Directors, along with the HAE Canada staff, have successfully crafted

Each year, before have day 🙂 on May 16th, HAE International organizes the HAE Global Activity Challenge as a focus for activities to raise HAE awareness amongst the

We want to send a MASSIVE THANK YOU to our friends from the CN Tower / Tour CN for helping make HAE Day 2024 so special by honouring

The current HAEC Five Year Strategic Plan ends July 2024, so the Board of Directors and staff have been meeting over the past few months to work on

The HAE Canada Board of Directors and staff are currently working with Heather Dow (Events and Management Plus) to develop our next Five Year Strategic Plan. We have

Throughout the year, the Rare Disease Day organization is "raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and

To honour Rare Disease Day 2024, HAE Canada Board members, Kerstyn Lane and Carmen Craciun, along with staff member, Daphne Dumbrille, attended the Canadian Organization for Rare Disorders (CORD)

A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit from gaining accreditation from Imagine Canada, a national organization that helps not-for-profit organizations

Thank you to our members who cast their vote during the 2023 Annual General Meeting on November 14th, either in person or via proxy; your presence allowed us