What’s it like to live with HAE?

Each HAE patient has their own unique story, leading some to feel alone with their rare disease. We want to help shift this perception.

We are grateful to our members who have generously shared their patient journeys to not only show how they are leading a fulfilled life, but also to help other HAE patients realize they are all unique, together.

Jordyn’s Story

Shannon’s Story

Anne’s Story

In Spring 2023, HAE Canada’s Central Regional Director, Kim Speiss, was featured in Canada’s Rare Voices, an online platform used to educate and create a supportive community.