HAE Canada Resources
Hospital Care Plan
A check list to explain how you can help your local hospital prepare for your next emergency visit.
Click here for a printer-friendly black & white version
Infographic
A guide to give a quick overview of HAE. (in English and French)
Tear Sheet
Document explaining HAE, including symptoms and triggers (in English and French)
HAE Fact Sheet
Further details explaining HAE. (created in collaboration with the Canadian HAE Network, CHAEN)
Brochure
in English and French
Patient Handbook
Handbook to provide suggestions to help HAE patients live life to the fullest.
School Info Package
Suggestions on how you can help your child's school prepare for a student with HAE. Document contains a sample letter from a parent to a teacher and a sample letter from your HAE specialist to a school's administration.
Wallet Card
A wallet sized document to identify you as a HAE patient. It is designed to assist medical personnel in emergency situations. The card was developed by the physician group, CHAEN.
Physician's Note
A sample letter that you can ask your HAE treating physician to fill out, personalizing it with your own HAE treatment plan. You can carry the letter with you when you travel or to the Emergency Department.
HAE International Resources
HAE TrackR
The app provides patients with an easy way to track attacks, treatments, and your condition. It provides both patients and physicians with a better decision foundation for planning the management of your HAE.
HAE Companion
The app provides an easy way to access and store HAEi's emergency card in the many languages of our member countries. It also offers so-called geofencing and can send push messages to the user when they are on the move. It
provides a list of ACARE Centres as well as HAE knowledgeable hospitals and physicians in different regions.
Patient Guide: Understanding HAE
A comprehensive brochure with a full description of HAE (types, symptoms, triggers, etc.) and the different HAE International resources available to patients across the globe.
The guide is available as a downloadable PDF in multiple languages
Women with HAE
With thanks to the US Hereditary Angioedema Association (US HAEA), HAEi introduced a new guide called ‘Women with HAE’ that focuses on the unique challenges faced by women with HAE. ‘Women With HAE’ covers three life stages: childhood, family planning & pregnancy, and menopause & aging.
Advocacy Academy
HAE International is offering free, online advocacy courses. This extremely comprehensive program is designed to support people with HAE in everyday life. The courses are delivered in small manageable chunks and can be accessed at any time, from anywhere. You can learn new skills in your own time and at your own speed.
The wide range of courses cover topics such as how to develop a HAE management plan, how to manage and overcome challenges for students in school & how young adults with HAE can improve their health and wellbeing.
