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2021 US HAEA Virtual Summit Series

HAE Canada is thrilled to receive an invitation to the US HAEA Summit Series; we hope to see many Canadians take part in this amazing opportunity: 

The US HAEA community cordially invites our HAE Canada friends to tune in to the 2021 Virtual Summit Series!

The Virtual Summit features 4 live events that take place in May, June, July, and August as well as pre-recorded videos of highly relevant HAE issues! All live events will be recorded and can be viewed along with the pre-recorded videos at your convenience.

The Virtual Summit Series offers “must see” programming that includes:

  • Information regarding new HAE therapies on the horizon,
  • An expert panel of HAE Physician/Scientists who will answer HAE-related questions,
  • Special segments covering:
    • the latest information on HAE with Normal C1 Inhibtor,
    • HAE in women, and
    • Children with HAE.
  • An overview of the latest patient-driven research initiatives,
  • Sessions targeted especially for the youngest members of the HAE community, and
  • Interactive features allowing you to post to our community board and take selfies at our selfie station!

The exclusive live and pre-recorded programming will kick off on Sunday, May 16, 2021, to commemorate hae day 🙂.

CLICK HERE to register yourself and all members of your household to receive your exclusive access code to participate in the 2021 US HAEA Virtual Summit Series!

Thank you HAEA for including Canada in your Summit Series.

HAE Canada Patient Information Update

A year ago we planned to have an in-person Patient Information Update in Manitoba, but unfortunately that event was cancelled due to COVID-19. Since we are still unable to have in-person meetings, we have decided to pivot and hold a virtual Patient Information Update. Fortunately, this allows us to open up registration to the entire membership.

Please join us for a live, on-line Zoom meeting with presentations. The focus will be on access to current and upcoming HAE treatments, with time for speakers to answer pre-submitted questions after their presentation. Attendees will also have the opportunity to listen to a fellow patient’s perspective on living with HAE.

WHO CAN ATTEND:

The Information Update is only open to members of HAE Canada. An invitation with the link to register for the event has been emailed to our membership; however, if you are a member and did not receive your invitation, please email Daphne at office@haecanada.org and one will be sent to you. If you are an HAE patient or caregiver in Canada but not a member and you’d like to attend, please CLICK HERE to submit your application for membership. Once you become a member we will send you the link to register.

WHEN:

Saturday, May 15, 2021 from 12:30-14:00 ET

INVITED SPEAKERS:

  • Dr. Chrystyna Kalicinsky: MD, FRCPC
  • Dr. Sylvain Grenier: Director, Plasma Derived Products Formulary Program, Canadian Blood Services
  • Anthony Castaldo: HAEA & HAEi, CEO & President, Regional Patient Advocate (RPA) for North America
  • Kim Speiss: newly appointed Regional Director for Manitoba & Saskatchewan

PANELISTS:

  • Jacquie Badiou, President, HAE Canada
  • Daphne Dumbrille, COO, HAE Canada