HAE Canada sent all our members links to the 2020 National Report Card survey. This important survey will allow HAE Canada to understand patient product use so we may continue to advocate for improved access to new, and current, safe and effective HAE treatments.
This information will aid in our current Advocacy campaign to list HAEGARDA through CBS and to expedite access to TAKHZYRO through the many Provincial and Federal Jurisdictions. We also require this data to show a need for Canadian research for HAE with normal C1.
Only HAE Canada members can fill out the survey. If you are a member and you did not receive the survey, please email email@example.com to request your link. If you are or care for a HAE patient, please consider joining HAE Canada and fill out the survey.
Completing this survey will also give members a chance to win a travel grant to attend the next HAEi Global Conference.