We hope so!
On June 12 we sent all our members an email that contains a button that navigates our members to their own personalized link to our National Report Card (NRC) survey.
If you didn’t see it and would like to search your inbox, the email is from HAE Canada staff member’s email address (ddumbrille@haecanada.org). We can appreciate that some people may have a strong firewall, so we recently sent a follow up email to help ensure our message lands in everyone’s inbox. If you didn’t get our first email, you may receive the reminder email that we will send in a few weeks.
If you are not able to locate your survey, please contact your Regional Director or Daphne (office@haecanada.org) and request a link to our NRC survey.
Thank you to everyone who has already filled out the survey and to those planning to fill it out shortly. Your participation is extremely important as it allows HAEC to advocate on behalf of all HAE Canada members.
Latest News
Updating the Canadian / Int’l HAE Guidelines
The Canadian/International HAE Guidelines have been developed to ensure that Canadians with HAE receive relevant
ORLADEYO: One Step Closer
Today, BioCryst Pharmaceuticals, announced it successfully completed negotiations with the pan-Canadian Pharmaceutical Alliance (pCPA) for
Our Next Five Year Strategic Plan
We are delighted to announce that following months of dedicated brainstorming and strategizing, the HAE
2024 HAE Global Activity Challenge
Each year, before have day 🙂 on May 16th, HAE International organizes the HAE Global
Global walk to celebrate hae day 🙂
We want to send a MASSIVE THANK YOU to our friends from the CN Tower
Walking for hae day 🙂
The current HAEC Five Year Strategic Plan ends July 2024, so the Board of Directors
HAEC has a new Mission and Vision
The HAE Canada Board of Directors and staff are currently working with Heather Dow (Events
Winnipeg: the latest Canadian city to Light Up For Rare
Throughout the year, the Rare Disease Day organization is "raising awareness and generating change for
Honouring Rare Disease Day 2024
To honour Rare Disease Day 2024, HAE Canada Board members, Kerstyn Lane and Carmen Craciun,
Imagine Canada Accreditation
A few years ago, HAE Canada’s Past President, Jacquie Badiou, realized that HAEC would benefit
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
