Our next Patient Information Update will be from Edmonton, Alberta, on April 29th. All members were sent a Save the Date; if you didn’t receive the email, please check your spam/junk.
If you are unable to locate the email, simply email Daphne at office@haecanada.org with your updated email address to ensure future updates and registration details reach you.
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Latest News
Improved access to affordable and effective drugs for rare diseases in Canada
On March 22, 2023, the Canadian federal government announced their plan to provide up to
CADTH Recommends Reimbursement for ORLADEYO
We are thrilled to share that the Canadian Agency for Drugs and Technologies in Heath
Rare Disease Day Breakfast with CORD
To honour Rare Disease Day 2023, HAE Canada President, and Ontario Regional Director, Michelle Cooper,
HAEC Board member featured in Canada’s Rare Voices 2023
For Canada's Rare Voices 2023, Patient Voice teamed up with 12 patients and their families,
Updates to our Board of Directors
We have some announcements to make about the HAE Canada Board of Directors. The 2022-2023
2022 HAEi Global Leadership Workshop
Traditionally, every two years, HAE International (HAEi) hosted the HAE Global Conference where patients, caregivers,
CBS Announces Results of the RFP for PPRP
Canadian Blood Services (CBS) Announces the Results of the Request for Proposals (RFP) for Plasma-Derived
The 2022 Virtual Global Walk
To celebrate hae day 🙂 over 5,000 people around the world contributed their steps to the
Health Canada Approves ORLADEYO
We are thrilled to share BioCryst Pharmaceutical's big announcement: Health Canada has approved their oral,
Takeda Canada Awarded Tender for TAKHZYRO
Héma-Québec, the organization in Quebec that manages blood and biological products, has awarded a
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
