We hope so!
On June 12 we sent all our members an email that contains a button that navigates our members to their own personalized link to our National Report Card (NRC) survey.
If you didn’t see it and would like to search your inbox, the email is from HAE Canada staff member’s email address (ddumbrille@haecanada.org). We can appreciate that some people may have a strong firewall, so we recently sent a follow up email to help ensure our message lands in everyone’s inbox. If you didn’t get our first email, you may receive the reminder email that we will send in a few weeks.
If you are not able to locate your survey, please contact your Regional Director or Daphne (office@haecanada.org) and request a link to our NRC survey.
Thank you to everyone who has already filled out the survey and to those planning to fill it out shortly. Your participation is extremely important as it allows HAEC to advocate on behalf of all HAE Canada members.
Latest News
2024-2025 Board of Directors
Thank you to all who either attended or submitted their proxy to help ensure HAE
ORLADEYO is now available in Alberta
It is clear the team at BioCryst is very busy because no sooner had we
ORLADEYO Now Available in BC
We are thrilled to share the exciting news that as of November 2024, people in
Attending CSACI’s Annual Scientific Meeting
From November 7 - 9, two Board members, Michelle Cooper (President) and Kim Speiss (Reg
Attending the HAEi Global Leadership Workshop
HAE Canada's leadership team attended the inspiring Global Leadership Workshop: Navigating the Future hosted by
Updating the Canadian / Int’l HAE Guidelines
The Canadian/International HAE Guidelines have been developed to ensure that Canadians with HAE receive relevant
ORLADEYO: One Step Closer
Today, BioCryst Pharmaceuticals, announced it successfully completed negotiations with the pan-Canadian Pharmaceutical Alliance (pCPA) for
Our Next Five Year Strategic Plan
We are delighted to announce that following months of dedicated brainstorming and strategizing, the HAE
2024 HAE Global Activity Challenge
Each year, before have day 🙂 on May 16th, HAE International organizes the HAE Global
Global walk to celebrate hae day 🙂
We want to send a MASSIVE THANK YOU to our friends from the CN Tower
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
