Please join us in the 2023 HAE Global Activity Challenge, organized by HAE International (HAEi). HAE Day unites the HAE community with May 16th as a focus for activities to raise HAE awareness.
Between now and the end of May, you can record each time you walk, swim, read, do yoga, paint a picture – anything! Please encourage your friends and family to join the competition – the more people participate, the more people learn about HAE.
HAEi’s website makes participation super easy. After an activity, you simply complete the online form and based on your type of activity, the site will convert it into “steps”. Please add your steps to help Canada win the challenge!
Thank you to everyone who attended our Patient Information Update from Edmonton, Alberta, on April 29th. We were so pleased to have an amazing turn out both in Edmonton and online.
Thank you to Dr. Bruce Ritchie and Dr. Adil Adatia who provided very informative presentations on HAE, available treatments and how they are providing wonderful comprehensive care to their patients in Alberta. Thank you also to Tony Castaldo, the HAEi and HAEA President and CEO, who shared the latest news from HAEi and the what is happening globally regarding HAE treatments.
We’d like to also extend a huge thank you to our Board members, Michelle Cooper (President) and Kerstyn Lane (Pacific Regional Director) who did a fantastic job organizing and hosting this event.
Improved access to affordable and effective drugs for rare diseases in Canada
On March 22, 2023, the Canadian federal government announced their plan to provide up to
CADTH Recommends Reimbursement for ORLADEYO
We are thrilled to share that the Canadian Agency for Drugs and Technologies in Heath
Rare Disease Day Breakfast with CORD
To honour Rare Disease Day 2023, HAE Canada President, and Ontario Regional Director, Michelle Cooper,
HAEC Board member featured in Canada’s Rare Voices 2023
For Canada's Rare Voices 2023, Patient Voice teamed up with 12 patients and their families,
Updates to our Board of Directors
We have some announcements to make about the HAE Canada Board of Directors. The 2022-2023
2022 HAEi Global Leadership Workshop
Traditionally, every two years, HAE International (HAEi) hosted the HAE Global Conference where patients, caregivers,
CBS Announces Results of the RFP for PPRP
Canadian Blood Services (CBS) Announces the Results of the Request for Proposals (RFP) for Plasma-Derived
The 2022 Virtual Global Walk
To celebrate hae day 🙂 over 5,000 people around the world contributed their steps to the
Health Canada Approves ORLADEYO
We are thrilled to share BioCryst Pharmaceutical's big announcement: Health Canada has approved their oral,
Takeda Canada Awarded Tender for TAKHZYRO
Héma-Québec, the organization in Quebec that manages blood and biological products, has awarded a
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
Support Family Testing – Patient Pack 1