THANK YOU to everyone who participated in HAE International (HAEi)’s annual Virtual Global Walk; a world-wide awareness initiative with the goal of improving diagnosis and care for people with HAE. Together, the global HAE community generated 146,906,803 steps. Canada was the fifth highest in step count, but we grabbed the top spot for number of participants – 911 Canadians stepped up for HAE. We are so thankful and proud of the Canadian HAE community.
Latest News
The 2022 Virtual Global Walk
To celebrate hae day 🙂 over 5,000 people around the world contributed their steps to the 2022 Virtual Global Walk. Thank you to the 911 Canadians who added their
Health Canada Approves ORLADEYO
We are thrilled to share BioCryst Pharmaceutical's big announcement: Health Canada has approved their oral, once-daily ORLADEYO® (berotralstat) for the routine prevention of HAE attacks in patients 12
Takeda Canada Awarded Tender for TAKHZYRO
Héma-Québec, the organization in Quebec that manages blood and biological products, has awarded a two-year tender for TAKHZYRO® (lanadelumab injection), as the sole option for prophylaxis subcutaneous
HAEi Advocacy Academy
HAE International is offering free, online advocacy courses. This extremely comprehensive program is designed to support people with HAE in everyday life. The courses are delivered in small manageable chunks and can
Our Next Patient Information Update: November 20, 2021
Please join us on Saturday November 20th from 1:00-3:00pm ET for our next Update! Details can also be found on our Upcoming Events page.
Notice of the 2021 AGM
We hope you can join us for our 2021 AGM. Please check your inbox for the invitation and links to register. Please check your spam box if you
Save the Date: Nov 20, 2021
Please mark your calendars! HAE Canada is hosting a Virtual Patient Information Update on November 20th at 1:00pm ET. Speakers, topics and other important details will be shared
Lanadelumab Added to NS Formulary
Lanadelumab (TAKHZYRO), a treatment to routinely prevent attacks in patients with HAE Type I or II who are 12 years old and up, was recently added to Nova
Congratulations Heather Dow
Who is Heather Dow? Heather has been supporting HAE Canada in many ways over the years, from providing technical support for our virtual Patient Information Updates and organizing
Winning the HAE Global Walk
Congratulations to the Canadian HAE Community! Canadians logged the most steps to win the 2021 Global Walk for a third time. Thank you very much to all who
2021 HAE Day 🙂
Happy HAE Day and Happy 10th Anniversary! We hope everyone celebrated HAE Day 🙂 by doing something extra fun. Did you go for a hike? Did you plant
TAKHZYRO: Available in Saskatchewan
HAE Canada is happy to share that Saskatchewan is the latest province to add lanadelumab (TAKHZYRO), a subcutaneous preventative HAE treatment, to their provincial drug formulary. Please click
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
