We hope so!
On June 12 we sent all our members an email that contains a button that navigates our members to their own personalized link to our National Report Card (NRC) survey.
If you didn’t see it and would like to search your inbox, the email is from HAE Canada staff member’s email address (ddumbrille@haecanada.org). We can appreciate that some people may have a strong firewall, so we recently sent a follow up email to help ensure our message lands in everyone’s inbox. If you didn’t get our first email, you may receive the reminder email that we will send in a few weeks.
If you are not able to locate your survey, please contact your Regional Director or Daphne (office@haecanada.org) and request a link to our NRC survey.
Thank you to everyone who has already filled out the survey and to those planning to fill it out shortly. Your participation is extremely important as it allows HAEC to advocate on behalf of all HAE Canada members.
Latest News
2023 – 2024 Board of Directors
Thank you to our members who cast their vote during the 2023 Annual General Meeting
I am Number 12 Campaign
HAE Canada, along with 12 other rare disease patient organizations, and Takeda Canada, unite to
ORLADEYO (oral treatment) is recommended for reimbursement in Quebec
Institut national d'excellence en santé et services sociaux (INESSS), whose missions is "to promote clinical
TAKHZYRO available through Veterans Affairs Canada
Qualifying HAE patients who access treatments through Veterans Affairs Canada (VAC) now have access to
TAKHZYRO available in PEI
Great news for eligible HAE patients in PEI. Lanadelumab (TAKHZYRO), a subcutaneous injection to routinely
Improved access to affordable and effective drugs for rare diseases in Canada
On March 22, 2023, the Canadian federal government announced their plan to provide up to
CADTH Recommends Reimbursement for ORLADEYO
We are thrilled to share that the Canadian Agency for Drugs and Technologies in Heath
Rare Disease Day Breakfast with CORD
To honour Rare Disease Day 2023, HAE Canada President, and Ontario Regional Director, Michelle Cooper,
HAEC Board member featured in Canada’s Rare Voices 2023
For Canada's Rare Voices 2023, Patient Voice teamed up with 12 patients and their families,
Updates to our Board of Directors
We have some announcements to make about the HAE Canada Board of Directors. The 2022-2023
Support Family Testing
Give valuable insights in HAE science
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:
