Travelling with HAE

Whether you are going away for business or pleasure, here are a few things to consider for your trip.  The more prepared you are – the more enjoyable your travel will be.

Five great tips for Planning Your Trip:

  • Carry your emergency contact info with you – on your phone.

  • Check with the HAE Canada office for information on medial care options at your destination.

  • Keep your HAE medication with you – in your carry-on bag.

  • Make sure you have enough medicine available for your trip AND after you are back home.

  • Request a doctor’s note or prescription to take on your trip, if you wish.

Doctor’s Note:
Although rarely requested by authorities, you may wish to carry a physician’s letter with you that authorizes you to carry your medication on board your flight. Some patients also pack a written prescription for their HAE therapy to have in-hand if needed.

Traveling, being away from your treating physician, or being faced with going to an unfamiliar Emergency Department for an HAE attack can be nerve-wracking.

Click on either link below to download a sample letter that you can take to your HAE treating physician. Ask him/her to fill it out, personalizing it with your own HAE treatment plan specifics, and add his/her emergency contact information so that you can carry the letter with you – whether on a long distance trip or just to the local Emergency Department.

Sample Letter for your HAE treating physician to complete (in Word)

Sample letter for your HAE treating physician to complete (in PDF format)

Contact Information:
Keep a handy list (either on paper or in your phone) of phone numbers for your doctor, your HAEC Regional Director, your emergency contact, next of kin, etc.

Local Health Care:
Be sure to check with your HAEC Regional Director before you travel for a referral to an HAE knowledgeable physician or an area hospital where you might receive treatment if it were necessary.

Double check to make sure you have enough therapy for a trip and for a short time after you return, so you have time for a refill to arrive. Carry your medication on board with you in your carry-on bag. Airlines are not responsible for lost checked bags or for any damage done to your medication during transit.

We all know HAE can be triggered by stress, so now try to relax and enjoy your trip.