On June 29th, HAE Canada hosted a members-only Virtual Patient Information Update to discuss access to current and upcoming HAE treatments in Canada. This event was a live, on-line Zoom meeting with presentations by:
Dr. Sylvain Grenier, CD, B Pharm, PharmD, FFIP, FOPQ, Director, Plasma Protein Products Formulary, Canadian Blood Services
Dr. Bruce Ritchie, MD, FRCPC, Professor, Division of Hematology, Dept. of Medicine at University of Alberta
Jacquie Badiou, President, HAE Canada
Daphne Dumbrille, COO, HAE Canada
Thank you Dr. Grenier for taking the time to present and provide our membership with details regarding access to treatment for Canadian HAE patients. Learning the complex, yet vital role that Canadian Blood Services plays in the lives of all Canadian HAE patients is helpful and important to learn. We believe you have reassured our membership that Canadian patients are safe when CBS provides treatment to HAE patients. Also, we need to thank Dr. Ritchie for once again providing our members with answers to a variety different medical questions; it is certainly beneficial to be armed with HAE knowledge.
We all greatly appreciated the time and expertise both Dr. Grenier and Dr. Ritchie provided during the Question & Answer session. We had approximately 180 people watching the webcast so your answers reached many. Thank you for that.
If you missed the Update, not to worry! Simply join the HAE Canada Cafe (click the menu item to the left) where you can view our past Information Updates.