Past Events

Virtual Patient Information Event

On June 29th, HAE Canada hosted a members-only Virtual Patient Information Update to discuss access to current and upcoming HAE treatments in Canada. This event was a live, on-line Zoom meeting with presentations by:

SPEAKERS:
Dr. Sylvain Grenier, CD, B Pharm, PharmD, FFIP, FOPQ, Director, Plasma Protein Products Formulary, Canadian Blood Services
Dr. Bruce Ritchie, MD, FRCPC, Professor, Division of Hematology, Dept. of Medicine at University of Alberta

PANELISTS:
Jacquie Badiou, President, HAE Canada
Daphne Dumbrille, COO, HAE Canada

Thank you Dr. Grenier for taking the time to present and provide our membership with details regarding access to treatment for Canadian HAE patients. Learning the complex, yet vital role that Canadian Blood Services plays in the lives of all Canadian HAE patients is helpful and important to learn. We believe you have reassured our membership that Canadian patients are safe when CBS provides treatment to HAE patients. Also, we need to thank Dr. Ritchie for once again providing our members with answers to a variety different medical questions; it is certainly beneficial to be armed with HAE knowledge.

We all greatly appreciated the time and expertise both Dr. Grenier and Dr. Ritchie provided during the Question & Answer session. We had approximately 180 people watching the webcast so your answers reached many. Thank you for that.

If you missed the Update, not to worry! Simply click below to watch.

Edmonton Patient Information Update

Thank you to Dr. Bruce Ritchie who spent his Saturday morning with Edmonton-area HAE Canada members. The Update was our first Webcast and it went very smoothly, thankfully! We are all getting used to living in the virtual world and we were grateful for everyone’s patience while we learn how to adapt. All enjoyed and benefited from Dr. Ritchie’s discussion on HAE and the latest treatments available in Canada – as well as learning about treatments that will be available in the future. Dr. Ritchie answered the many questions that were submitted before and during the Webcast. Thank you to our amazing Regional Director Pacific, Lorraine Coumont, who connected with most members before the event to ensure they were aware of the event and helped them join online. Thank you also to Dr. Ritchie’s staff who invited his HAE patients to the event – we appreciated your help.

Please click below to watch the recording of the Update.

CANCELLED - Winnipeg Patient Information Update

Unfortunately, due to COVID-19, we had to postpone our Winnipeg Information Update. Stay tuned for when we announce the new date.

CORD's Event

CORD's Rare Disease Day Conference 2020

Board members and staff were lucky to participate in the Canadian Organization for Rare Disorders’ conference before COVID-19 caused all conferences to be cancelled. The conference focused on learning about Canada’s Rare Disease Strategy and the impacts the PMPRB changes will have on rare disease treatments in Canada. All participants also walked to Parliament Hill to promote CORD’s “Fight for our Lives” campaign. It was a great conference!

CORD's Event