Past Events

Edmonton Patient Information Update

Thank you to Dr. Bruce Ritchie who spent his Saturday morning with Edmonton-area HAE Canada members. The Update was our first Webcast and it went very smoothly, thankfully! We are all getting used to living in the virtual world and we were grateful for everyone’s patience while we learn how to adapt. All enjoyed and benefited from Dr. Ritchie’s discussion on HAE and the latest treatments available in Canada – as well as learning about treatments that will be available in the future. Dr. Ritchie answered the many questions that were submitted before and during the Webcast. Thank you to our amazing Regional Director Pacific, Lorraine Coumont, who connected with most members before the event to ensure they were aware of the event and helped them join online. Thanks also needs to go out to Dr. Ritchie’s staff who invited his HAE patients to the event – we appreciated your help.

CANCELLED - Winnipeg Patient Information Update

Unfortunately, due to COVID-19, we had to postpone our Winnipeg Information Update. Stay tuned for when we announce the new date.

CORD's Event

CORD's Rare Disease Day Conference 2020

Board members and staff were lucky to participate in the Canadian Organization for Rare Disorders’ conference before COVID-19 caused all conferences to be cancelled. The conference focused on learning about Canada’s Rare Disease Strategy and the impacts the PMPRB changes will have on rare disease treatments in Canada. All participants also walked to Parliament Hill to promote CORD’s “Fight for our Lives” campaign. It was a great conference!

CORD's Event