2022 HAEi Global Leadership Workshop


Traditionally, every two years, HAE International (HAEi) hosted the HAE Global Conference where patients, caregivers, member organizations, pharmaceutical companies and physicians joined together to learn and connect. This year, after a COVID-caused delay, and the

2022 HAEi Global Leadership Workshop2022-10-18T11:24:04-06:00

CBS Announces Results of the RFP for PPRP


Canadian Blood Services (CBS) Announces the Results of the Request for Proposals (RFP) for Plasma-Derived Plasma Protein and Related Products (PPRP). Through their formulary, CBS provides many patients across Canada, including patients with HAE, with

CBS Announces Results of the RFP for PPRP2022-09-29T09:22:27-06:00

The 2022 Virtual Global Walk


To celebrate hae day :-) over 5,000 people around the world contributed their steps to the 2022 Virtual Global Walk. Thank you to the 911 Canadians who added their steps to help make this awareness campaign

The 2022 Virtual Global Walk2022-06-22T13:19:40-06:00

Health Canada Approves ORLADEYO


We are thrilled to share BioCryst Pharmaceutical's big announcement: Health Canada has approved their oral, once-daily ORLADEYO® (berotralstat) for the routine prevention of HAE attacks in patients 12 years and older. Please CLICK HERE for

Health Canada Approves ORLADEYO2022-06-06T12:50:06-06:00

Takeda Canada Awarded Tender for TAKHZYRO


Héma-Québec, the organization in Quebec that manages blood and biological products, has awarded a two-year tender for TAKHZYRO® (lanadelumab injection), as the sole option for prophylaxis subcutaneous (SC) treatment for Type I/II HAE patients.

Takeda Canada Awarded Tender for TAKHZYRO2022-05-11T07:55:49-06:00

HAEi Advocacy Academy


HAE International is offering free, online advocacy courses. This extremely comprehensive program is designed to support people with HAE in everyday life. The courses are delivered in small manageable chunks and can be accessed at any time, from anywhere

HAEi Advocacy Academy2022-01-06T15:42:55-06:00

Notice of the 2021 AGM


We hope you can join us for our 2021 AGM. Please check your inbox for the invitation and links to register. Please check your spam box if you do not receive our invitation - unfortunately

Notice of the 2021 AGM2021-11-16T11:21:21-06:00

Save the Date: Nov 20, 2021


Please mark your calendars! HAE Canada is hosting a Virtual Patient Information Update on November 20th at 1:00pm ET. Speakers, topics and other important details will be shared soon - we hope to see you

Save the Date: Nov 20, 20212021-10-25T09:56:23-06:00

Lanadelumab Added to NS Formulary


Lanadelumab (TAKHZYRO), a treatment to routinely prevent attacks in patients with HAE Type I or II who are 12 years old and up, was recently added to Nova Scotia's drug formulary. To access this treatment,

Lanadelumab Added to NS Formulary2021-09-13T15:48:46-06:00
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