HAEi Advocacy Academy


HAE International is offering free, online advocacy courses. This extremely comprehensive program is designed to support people with HAE in everyday life. The courses are delivered in small manageable chunks and can be accessed at any time, from anywhere

HAEi Advocacy Academy2022-01-06T15:42:55-06:00

Notice of the 2021 AGM


We hope you can join us for our 2021 AGM. Please check your inbox for the invitation and links to register. Please check your spam box if you do not receive our invitation - unfortunately

Notice of the 2021 AGM2021-11-16T11:21:21-06:00

Save the Date: Nov 20, 2021


Please mark your calendars! HAE Canada is hosting a Virtual Patient Information Update on November 20th at 1:00pm ET. Speakers, topics and other important details will be shared soon - we hope to see you

Save the Date: Nov 20, 20212021-10-25T09:56:23-06:00

Lanadelumab Added to NS Formulary


Lanadelumab (TAKHZYRO), a treatment to routinely prevent attacks in patients with HAE Type I or II who are 12 years old and up, was recently added to Nova Scotia's drug formulary. To access this treatment,

Lanadelumab Added to NS Formulary2021-09-13T15:48:46-06:00

Congratulations Heather Dow


Who is Heather Dow? Heather has been supporting HAE Canada in many ways over the years, from providing technical support for our virtual Patient Information Updates and organizing the AGM, to helping update our strategic

Congratulations Heather Dow2021-07-07T15:06:47-06:00

Winning the HAE Global Walk


Congratulations to the Canadian HAE Community! Canadians logged the most steps to win the 2021 Global Walk for a third time. Thank you very much to all who participated - the efforts of all illustrate

Winning the HAE Global Walk2021-06-08T15:22:56-06:00

2021 HAE Day :-)


Happy HAE Day and Happy 10th Anniversary! We hope everyone celebrated HAE Day :-) by doing something extra fun. Did you go for a hike? Did you plant some flowers? Make a special meal for

2021 HAE Day :-)2021-05-16T11:34:41-06:00

TAKHZYRO: Available in Saskatchewan


HAE Canada is happy to share that Saskatchewan is the latest province to add lanadelumab (TAKHZYRO), a subcutaneous preventative HAE treatment, to their provincial drug formulary. Please click here to read the Exceptional Drug Status

TAKHZYRO: Available in Saskatchewan2021-05-11T08:55:08-06:00

HAEGARDA: Available Across Canada


We are over the moon that our members are telling us that they are excited about having access to HAEGARDA, a subcutaneous C1 esterase inhibitor (C1-INH) prophylaxis therapy for adolescent and adult HAE patients. We

HAEGARDA: Available Across Canada2021-05-03T12:52:12-06:00
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