For Canada’s Rare Voices 2023, Patient Voice teamed up with 12 patients and their families, clinical experts and patient-centric biopharmas to shed some light on rare disease communities. Please Click Here to read about each patient’s unique journey. Of particular note, HAE Canada Board member, Kim Speiss, shared her own journey and how she’s managed to juggle a busy home and work schedule while managing her HAE. Thank you Kim, for generously sharing your story.

We’d like to thank Patient Voice for amplifying the voices of patients with rare diseases and including a HAE patient in the 2023 campaign.