We’ve Launched Our 2020 National Report Card

HAE Canada sent all our members links to the 2020 National Report Card survey. This important survey will allow HAE Canada to understand patient product use so we may continue to advocate for improved access to new, and current, safe and effective HAE treatments.

This information will aid in our current Advocacy campaign to list HAEGARDA through CBS and to expedite access to TAKHZYRO through the many Provincial and Federal Jurisdictions. We also require this data to show a need for Canadian research for HAE with normal C1.

Only HAE Canada members can fill out the survey. If you are a member and you did not receive the survey, please email office@haecanada.org to request your link. If you are or care for a HAE patient, please consider joining HAE Canada and fill out the survey.

Completing this survey will also give members a chance to win a travel grant to attend the next HAEi Global Conference. 

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Latest News

May 22nd, 2020|

HAE Canada is excited to announce that our new and improved website officially went live today, May 22, 2020. This project was made possible through our partnership with

Great News!

May 19th, 2020|

HAEGARDA and TAKHZYRO are now available in Canada. Please talk to your HAE specialist about access. Thank you Canadian Blood Services (CBS) for a very collaborative, informative and

HAE Day 2020

May 16th, 2020|

For HAE Day 2020, HAE Canada wants to celebrate! To honour the day we have two BIG announcements: 1) Our website received a facelift! We hope our

Virtual HAE Global Walk

April 1st, 2020|

It’s time, once again, for HAE Canada to please ask you to take out your walking shoes and participate in the virtual HAE Global Walk arranged by HAE

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Support Family Testing

Give valuable insights in HAE science

Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAE International has developed two documents for patients. You can download the documents below:

Support Family Testing – Patient Pack 1

Support Family Testing – Patient Pack 2

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