HAE Canada gathers important data through different surveys, including our National Report Card surveys (completed in 2017 & 2020) for the entire membership or surveys for more targeted members, when necessary.

Data collected through these surveys is ultimately used to create posters & abstracts and patient submissions. Posters & abstracts are used to present data at both national and international conferences, while patient submissions are used to provide payers with important information that will be used to help determine access to new treatments.