Tag Archives | Hereditary Angioedema

HAEi- Bringing International to HAE

As Canadians living with hereditary angioedema we often feel quite isolated, not only in our own communities, but internationally. As a relatively young country with a large but spread-out population, we often hear tales from across the seas of how HAE is being handled in other countries, their advanced treatments and resources. Even more often […]

Continue Reading
RDD_white

Rare Diseases Without Borders – Answering TTP (Part 2)

Today is the 6th annual Rare Disease Day, and an opportunity for HAE Canada to put aside our cause, for just one day, and recognize that we are a part of a vast and incredible community of all rare diseases. In celebration of this day, we have chosen to take the opportunity to spotlight another […]

Continue Reading
RDD_white

Rare Diseases Without Borders – Answering TTP (Part 1)

Alone we are rare, together we are strong. Tomorrow is the 6th annual Rare Disease Day! Every year on the last day in February, countries from around the world come together to raise awareness about rare diseases. But beyond raising awareness, Rare Disease Day also marks an opportunity for people within the rare disease community […]

Continue Reading

The First Global Guideline for the Management of HAE

On December 5th, 2012 the World Allergy Organization (WAO) HAE International Alliance published in the World Allergy Journal, the first global guideline for the management of HAE (full article here: WAO Management of Hereditary Angioedema). At the consensus conference held in Gargnano del Garda, Italy, from September 26 to 29, 2010,  58 experienced HAE expert physicians from […]

Continue Reading

Cinryze Comes to Canada

Cinryze Comes to Canada On January 25, 2013, HAE Canada received word from Canadian Blood Services (CBS) that, effective April 1, 2013, they will be adding a second supplier of C1 esterase inhibitor to their portfolio. Viropharma’s C1 esterase inhibitor product, Cinryze, has been given a five year contract with CBS, who will officially cover […]

Continue Reading
Top